The Marfan Foundation


The Marfan Foundation creates a brighter future for everyone living with Marfan syndrome and related disorders. We pursue the most innovative research to save and improve the lives of everyone in our community. We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment. We provide comprehensive support to families, caregivers, and healthcare providers. We will not rest until we’ve achieved victory—a world in which everyone with Marfan syndrome or a related disorder receives a proper diagnosis, gets the necessary treatment, and lives a long and full life.